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Follow @curepoppyandoliver

Yesterday Poppy turned 10. This video is her just three years ago 💜

We didn’t know then that she had childhood dementia. Watching this now, I see so much of what we’re fighting to keep.

A few birthday reflections, an unexpected reminde
I’ve talked a lot about sleep but it’s just a really big deal for us. For all Sanfilippo families.

Anyone who’s had a newborn knows how quickly the most restful time of day can turn into the most contentious. But with Sanfilippo, t
Before Poppy and Oliver were diagnosed, we didn’t know children could get dementia either.

Today is Childhood Dementia Day. If you learned something from this post, would you share it? Help us spread the word about what childhood dementia is,
I am technically a day late to this birthday post, more than that if you’re on Paris time 😅 But I couldn’t let it pass without celebrating Dr. Françoise Piguet.

Françoise is the scientist behind Project Poppy, and one of t

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